This Could Be the Week!

Well, if I can make it through this week, I think I can make it through almost anything!

This week, Bennett could come home. He's doing well. They want to keep him stable on 1 liter of oxygen. Then, on Tuesday/Wednesday, they will see how he does on the oxygen concentrator. If he does well on that, he can come Thursday/Friday.

Thursday/Friday. The same days I am preparing to move. To Arizona. By myself. Josh has already left to start his new job tomorrow.

So Bennett could come home, and I have to learn how to use the oxygen concentrator, regulate his breathing, get him on a sleeping schedule, feed him through the g tube every 3 hours, and supervise moving company (ok, I know I'm lucky I don't have to pack and move myself), then clean then take my respiratory-challenged child on an airplane 1 day after getting out of the hospital.

Yes, I have a little bit of anxiety!

Oh, did I mention I am sick with a sore throat? And so is Josh? And Nolan has a cough and had pink eye last week?

Am I bad to want life to slow down just a wee bit after this? To settle down and not be crazy and unstable? To be able to plan more than a day in advance? To have my family altogether and not separated?

But, I am just taking it a day at a time. And I feel like I am finally starting to accept God's plan for Bennett, his imperfect yet beautiful body, and my role in all of it.

Life's not all bad--Nolan is a huge sunshine in my life. He has started saying, "I love you Mom, sooo much." and singing songs like "5 little Monkeys jumping on the bed" and "Twinkle Twinkle Little Star" and "Baa Baa Black Sheep" and "Head, Shoulder, Knees and Toes." He is sooo cute. He brings light and joy into my life.



We are grateful for Josh's job. After spending nearly half of the year unemployed, we feel very blessed for the opportunity for Josh to work at Raytheon and for us to live by both of our parents.

I have ammmmmmmmmaaaaaaazzzzzzzzzing friends. They have cooked meals for me, brought me treats, watched Nolan, come with me to the hospital, invited me to do fun things, texted to check in on me, let me talk and cry on their shoulder. I am really sad to leave them.

Wish me luck! The next time I write a blog post, I hope we will all be safe in Arizona!