Day 5 of Nolan's Life

Well, we just love Nolan.

He is our miracle baby.

We found out today from the neurologist that he is pretty positive this man does not have a Dandy Walker malformation. That was really encouraging to us. He does have vermis hypoplastia, which means his cerebellar vermis is slightly underdeveloped. He said anatomically, this is mild. He does not know what it means for Nolan's future. He said often it's accompanied with delayed development, but only time will tell. We did read that kids with vermis hypoplasia, if there is no other brain malformation present, tend to be pretty "normal". We are hopeful! He has defied so many odds already, we know the miracles associated with this baby have not and will not cease.

He has a couple of other birth defects. He has a hole in the heart, which the cardiologist said will probably heal itself.

He also has a cyst on his bladder, which may or may not need surgery.

He is our sweet little man and we pray for his health every day.

He is off the IV going into his umbilical cord that gave him food, and now he just gets food from me and from a cord going into his nose.

I am hoping he will be home by Christmas.

I am now home from the hospital but still spend at least 3 hours a day there with him. I love every minute.